Newborn screening for Krabbe disease and requiring evaluation of additional lysosomal storage disorders for mandatory screening. (FE)

What it would have done

Summary by the Legislative Reference Bureau, the Legislature's nonpartisan drafting office. It's their wording, not ours.

This bill requires that, in addition to the other congenital and metabolic disorders for which testing is currently required under rules established by the Department of Health Services, the attending physician, nurse-midwife, or in certain circumstances, other birth attendant, must ensure that every infant born undergoes testing for globoid cell leukodystrophy, also known as Krabbe disease, which is a lysosomal storage disorder. Current law requires that an attending physician or nurse-midwife ensure that every infant born undergoes testing for certain congenital and metabolic disorders prior to the infant's discharge from the hospital or maternity home. For infants born elsewhere, the attending physician, nurse-midwife, or other birth attendant must ensure that the infant is tested within a week of birth. As authorized by current law, DHS specifies by rule the congenital and metabolic disorders for which newborn infants are to be screened. Current law allows an exception to the testing requirement if the parents or legal guardian object on the basis of a conflict with religious tenets and practices or with their personal convictions.

Under the bill, for infants born in a hospital or maternity home, the attending physician or nurse-midwife must ensure testing for Krabbe disease is completed before the infant is discharged or within one week of birth, if the infant has not yet been discharged. For births occurring outside a hospital or maternity home setting, the attending physician, nurse-midwife, or other birth attendant must ensure testing is done within one week of birth. The parental objection exemption under current law also applies to the testing required under this bill.

Who's behind it

11 representatives are its authors⁠. All 11 are Republicans.

6 more lawmakers signed on in support⁠.

What it would cost

State agencies filed a cost estimate. Each opens as a PDF from the Legislature.

• Fiscal Estimate From DHS

Versions and amendments

Every text the Legislature printed for this bill, including proposed changes. Each opens on the Legislature's site.

• Amendment Histories
• LC Amendment Memo