A statewide Parkinson’s disease registry. (FE)

What it would have done

Summary by the Legislative Reference Bureau, the Legislature's nonpartisan drafting office. It's their wording, not ours.

This bill directs the Department of Population Health Sciences, or its successor, at the UW-Madison School of Medicine and Public Health to establish and maintain a Parkinson’s disease registry and to collect data on the incidence and prevalence of Parkinson’s disease and parkinsonisms in this state. The bill defines “parkinsonism” as a condition that is similar or related to Parkinson’s disease.

In addition, under the bill, if a health care provider treats or diagnoses a patient with Parkinson’s disease or a parkinsonism, that health care provider or the health care facility that employs or contracts with the health care provider must report information about the patient’s Parkinson’s disease or parkinsonism to the Department of Population Health Sciences for purposes of the Parkinson’s disease registry. If a patient declines to participate in the Parkinson’s disease registry, the health care provider or health care facility must report only the incident of the patient’s Parkinson’s disease or parkinsonism. Under the bill, these requirements are considered to have been met if the health care provider includes the information in the affected patient’s electronic medical record and the entity that has provides the health care provider’s electronic medical record services relays the information to the UW population health sciences department.

Who's behind it

21 representatives are its authors⁠. 17 are Democrats and 4 are Republicans.

17 more lawmakers signed on in support⁠.

What it would cost

State agencies filed a cost estimate. Each opens as a PDF from the Legislature.

• Fiscal Estimate From DHS
• Fiscal Estimate From UWS